Raising Awareness of Ivemark Syndrome

Raising Awareness of Ivemark Syndrome

0 0 hace 4 meses
If you've ever wondered what Ivemark Syndrome is, you need to listen to this program! Ivemark Syndrome is a very rare constellation of birth defects which typically include malformations of the heart.

Julia Mayfield is and adult born with a rare genetic condition called Ivemark Syndrome. According to the National Organization for Rare Disorders, Ivemark Syndrome is comprised of: 1) an absent or underdeveloped spleen, 2) cardiovascular anomalies and 3) abnormal placement of the organs in ... Más informaciones

Síguenos en Facebook

iAB member
Copyright 2020 - Spreaker Inc. a Voxnest Company - Crea un podcast - New York, NY
Help